You are not alone!
This organization exists for the purpose of welcoming and supporting new families as we work together to pave the way for a better future.
We are creating a path for children with CHAMP1 disorders to receive treatment through research and our community working together.
Here's How You Can Get Involved
Join Our Community
Become a member of our private family support Facebook group.
Join The CHAMP1 Registry
Help progress research into CHAMP1