Charity Board
Scott Hutchings
chair & Co-Founder
Scott Hutchings daughter Sienna, was diagnosed with CHAMP1 in May 2022.
After receiving the diagnosis there was very little information available for the geneticist, medical community or the general public.
With a background in fundraising and organising charity events he decided to take the next step and founded CHAMP1 UK.
The Hutchings family are based in Dorset, England.
Sarah Hutchings
Trustee & Co-Founder
Sarah Hutchings daughter Sienna, was diagnosed with CHAMP1 in May 2022.
Sarah has a background in SEN having worked in SEN settings for over 10 years.
Using this experience she wants to helps CHAMP1 families by offering advice on developing communication skills and helping make families aware of the support they are entitled to.
Sarah is passionate about ensuring those with SEN get the support that they need.
Jeff D'Angelo
Trustee
Jeff D’Angelo is the Proud father of JJ. Since day one of his son’s birth, he has been committed to giving him the best possible chance to succeed. After receiving a diagnosis of CHAMP1 It’s been his life’s mission to fuel research in hopes for a cure and of a better life. In addition to co-founding the CHAMP1 Research Foundation, Jeff has served as a teacher, basketball coach and special needs ministry leader at his church. Jeff is a loving father and husband who is motivated daily by his son to do all he can to advocate, spread awareness, further research.
As the leading non-medical expert in CHAMP1 we are delighted that Jeff joined our board of trustees.